Latest News

We are cleared for surgery on Tuesday. We do not have a time of day yet, but Casey will get her feet and ear tubes done in just a few days. We have made sure that everyone is VERY aware of previous issues as well as all of her current risk factors. Our biggest concern …

Looks like surgery is going to be on the 9th instead of the 2nd. We were so close to having those feet fixed. Casey, Tim and I have all been pretty sick this week. We talked with Ortho today and they said that with her being high risk already that they did not want to …

First of all I need to say thank you to all of Casey’s supporters. The response to her new website has been nothing short of amazing. We really appreciate everyones support. We have the last few features online now. Be sure to sign the guestbook to let Casey know you were here. Now on to …

Casey’s new site is online. We are still working on a few features and minor changes, but the bulk of the site is ready to go. Please use www.caseybarnes.org for Casey’s site. Over the next few days we should be getting everything activated and a few minor tweaks worked out so you will see a …

Just a quick note to all that we are making a lot of changes to the web site. In addition to changing the web site name and layout, we are setting up a way to take donations as some people have asked about, to sell items like “Casey” bracelets, and to generally make it easier …

Things are finally getting back to normal. Casey has been really busy, but all good stuff. Tim is feeling a lot better and has been back working for a little while now. He started his PT a couple of weeks ago and is doing really good. Casey has her eye appointment a few weeks back. …

Casey has been pretty busy these past couple of weeks. She has been working hard in all of her therapies (PT, OT & Cranial). She is making progress. She still doesn’t bend on her own, but in PT she was able to get past 90^ on both legs. Cranial and OT have really been helping …

We took Casey to the pool for her first swim. We were not sure how she would react, but she seemed to really like it. She hates her bath until we start to wash her hair then she loves the bath. In the pool I let her float (with my support) and I bounced her …