Category: Casey

Where do I even begin?  Shortly after my last post, Casey started to do much better.  She was not needing oxygen except for a few ours every few days.  She was getting her spunk back.  She had started back to dance, music and therapy.  All in all, things were going really well. We had her …

Casey has been getting stronger by the day.  After a great week we decided she was up for her birthday celebration with her friends.  She was so excited last night about seeing her friends that she could not even get to sleep.  She got all dressed up today in her My Little Pony dress, the …

We have been home for a little over a week now and things are slowly improving.  This is pretty normal for Casey.  She can go downhill really fast, but the climb back up is always a long one. Casey has still not found her voice.  She is trying to make some sounds, and there have …

Since Casey is home we decided to have a quiet family celebration for her birthday (and for being home) this weekend.  Tim’s mom and brother Larry came in from Indiana and my mom and John came in from Houston and my sister Megan and grandpa came over.  Casey was pretty out of it for the …

WE ARE HOME!!!  Although we are home, Casey still has a lot of work to do.  The rest of the work can be done at home.  At home she is more comfortable, able to go at her own pace, and we don’t have to wait on or rely on others to get her what ever …

Yesterday afternoon Casey moved out of the PICU and into the IMC. The IMC is where we usually get admitted so we are much more comfortable here. The staff knows Casey (& us). The room is a little bigger & it has a shower (we stink). There is still low patient:nurse ratio as well so …

This weekend was really hard on Casey (and us).  Friday and Saturday we had to push her really hard with her different treatments.  She worked so hard, but it took its toll on her.  Saturday night Tim and I could not take it anymore.  We talked with the doctors on Sunday and told them that …

Casey stayed on the bilevel bipap for nearly 24 hours straight. She came off a few times for minutes, but mostly she stayed on. This mornings X-ray showed a little (not much) improvement. The doctors wanted to keep her on bilevel all day again. Casey was not having it though. She was fighting the machine …

Casey did really great last night, but her X-ray this morning was bad. Not only is her left lung worse, but her right side is also showing more problems now. She also had breathing / heart rate issues this morning and then spiked a fever. They have started her on antibiotics for a possible infection …

Casey had a full day.  We  things started bright and early.  Around 3:AM when Casey finished up a round of bipap and then we got a new weight on her.  She was really angry about being woke up for a weight, but I am glad we got one.  She hit 31 pounds back in 2009, …