Over the past nearly 2 years now I have had the privilege of meeting many amazing children. In some of the hospitals and clinics I have been amazed by children’s strength. In addition to the amazing children that amaze me with their fights I have also met many children that amaze me with their generosity …
Party Prep
Casey had a good week. Tim and I both had doctor appointments on Tuesday morning (luckily in the same building) so we all went. Casey was able to visit the doctor and NOT be a patient. She was so funny. My doctor wears scrubs and bent down to talk to Casey. Casey just froze. She …
Latest Updates
I don’t remember much from Wednesday. I know I had surgery and I hear that it went well. Other than that the day is pretty much a blur to me. I am not allowed to lift or strain for at least a week. It is awful not being allowed to pick Casey up. She is …
Houston and more
Casey had a hard week last week. She wasn’t feeling well off and on for most of the week. We had to cancel a lot of her therapies. She seemed to be a little better on Friday so we kept our ortho appointment in Houston. We had a pretty good trip out. Casey did really …
Happy Easter
Casey has been a busy girl since our last post. We met her eye doctor. We had to go to him so we could get a Texas form filled out in order to get her vision services started. He wasn’t bad, but he did not compare to Dr. Bill back in LA. Since the eye …
More Teeth
When Casey was about 9 months old she started to get a few teeth. However, shortly after they started to grow she got really sick. Her teeth stopped growing and have been pretty slow to start back up since. We learned from some of her doctors that the body will starve the teeth and mouth …
Weekly Update
We met Casey’s ENT last week. He seems really good. Casey’s tubes are in place so for now we don’t need anything new from him. If/when she needs new tubes he would do it at Dell Children’s Hospital so that is good. His staff seemed really good too. We got there and only waited a …
What’s Happening…
We met Casey’s new Pulmonary doctor this week. He is not close to the house so Tim had to go with us to drive so I could sit with Casey in the back. We went during lunch and they were able to get us in and out pretty quick so Tim was able to get …
Daddy’s Back
Things are starting to get back to normal around here. Tim got home Friday evening and boy was Casey happy to see him. Overall she was really good while he was gone, but there a few times that she let me know she was really missing her daddy. We kept pretty busy while Tim was …