Disclaimer:This post is for those that like to read about science and medicine and want to know more about what is going on with Casey medically- as opposed to our normal social or general updates. If you like to read the medical stuff, read on. If you are bored with this type of detail you …
It has been a long, rough few weeks around here. One of our night nurses that was working 5 nights a week was not working out. Early May we decided to let her go. The agency we use sent out a couple of nurses, but none that worked out. Luckily our other night nurse has …
On Saturday, April 25th, Casey had a fun birthday party in the park. A bunch of her friends came and we had a pavilion all to ourselves. The kids played games, a clown came to paint faces & make balloon shapes, and we of course had cake. It was really hot that day. When we …
Wednesday night after the nurse came in Tim and I both crashed into bed. It felt like it had been such a long week, then we were reminded it was only Wednesday!!! We have been going nonstop since our last post. Some good, some not so good, some medical, really it has been some of …
Last week was Spring Break. Casey wasn’t feeling well for most of the week. We did a more accurate culture on her respiratory issues and started some new medications last week. She is getting an antibiotic as well as an inhaled antibiotic to try to help get this crud out of her lungs and her …
I occasionally take a few hours here and there for myself. I may grab a long lunch with some girlfriends, catch a movie, get my hair done, I have even been able to join friends for the rare evening out a couple of time. Usually I am gone for a few hours at the most. …
Casey had her 3rd dance recital on Sunday. I can’t believe she has been my little dancing princess for 3 years now. I can’t believe she is turning 9 this April either! The time has gone way too fast. Last year the dance recital was kind of a disaster. Casey was not doing well and …
The Fun Stuff: Casey is wrapping up her Cookie Sales. She is the top seller in her troop. She kind of has an unfair advantage though- there are a lot of people in her care circle that were all more than happy to buy cookies from Casey. We are down to our last 5 boxes! …
Casey’s lung seems to have opened back up after a round of antibiotics and some time on bipap. She is still doing some crazy stuff and needing oxygen more than before, but we are not sure if it is really a sick thing or just her getting bigger and her body needing time to catch …
We did not finish 2014 quite as strong as we had hoped. Shortly before Christmas Casey seemed to be coming down with a little cold. She was having a lot of heart rate issues, breathing issues, thick sticky secretions and needed oxygen and pain medicine quite a bit. On Christmas day she seemed to be …
