On Tuesday our new nursing company (PSA) came out to admit Casey. Overall it went well. We really like our case manager. When everyone left Tim said he wishes she could be our nurse. The nurse that came out is very sweet. Casey is having a rough time adjusting. She has been having a hard …
One Thing After Another
Oh my goodness, I can’t seem to win with our nursing situation. We had Casey’s previous nurse (the school nurse) scheduled to come out on Tuesday evening so we could go out and celebrate our anniversary. The service called in the morning and told me that she had gone to the ER the night before …
Nursing Saga Part ???? (to many to count)
It seems like we started out with such great nurses. The first nurse we had we loved. After her we had crazy nurse. She was only with us for a couple of weeks. After crazy nurse we had 2 nurses that were great. We had these 2 for a while and life was good. Tim …
Good Stuff
Casey had a full day yesterday. She had a 12:00 appointment to get her thumbs and legs injected with Botox. Before that appointment we had to stop by imaging and get a follow-up chest xray. After Friday’s xray the imaging center called to tell us that they were not happy with the quality of the …
Follow-Up
Casey had her follow-up appointment with pulmonary yesterday morning. The doctor checked her out then sent us for an xray. We are supposed to continue with her antibiotics and lots of chest percussion and breathing treatments. Monday she is getting Botox in her legs and hands. We have to go in early and get another …
Updates
Casey is starting to respond to her antibiotics. She has wanted nothing but sleep and cuddles up until today. This afternoon she actually had some energy and played for a little bit. She is still junky. You can hear and feel the stuff in her lungs when she breaths. She is doing her best to …
XRay Report
When I spoke with Casey’s pulmonologist he was pretty busy. He had been given the report orally and did not have the written report in front of him. After I spoke with him Casey’s nursing service called. They had the full report. I am so impressed with my little wonder girl. I asked her this …
Mobile Imaging
Casey has been having a hard week. She has slowly been getting a little worse each day (since about midweek). She gets plugged into a pulseox (monitors heart rate & oxygen saturation) multiple times through out each day. We have noticed her average heart rate has been going up and her saturation has been going …
Here We Go Again
UGH!!! Many months back Tim and I went round and round with our insurance company. They kept denying Casey’s nursing care. They said that she did not need it (WHAT!!?). We had to collect very detailed letters from ALL of Casey’s doctors and we had to write letters ourselves as well. The issue went back …